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How One Woman With a Very Rare Disease Secured a Clinical Trial

The New York Times – On the Runway:

Through sheer determination, Neena Nizar has become the first patient in a clinical trial testing a treatment for her disease — one so rare it affects just 30 people worldwide.

Gina Kolata
Author: Gina Kolata

This post first appeared in The New York Times – On the Runway. Read the original article.

Written by

Gina Kolata

in

Drugs (Pharmaceuticals), Jansen’s Metaphyseal Chondrodysplasia (JMC), National Institutes of Health, Nizar, Neena, Rare and Orphan Diseases
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